About JerameyJeramey Etherton started Jerameys Journey and it has become a movement. I was diagnosed in November 2018 with ALS. I am a proud father of 5 amazing kids, brother to 6 unique siblings, friend to an eclectic faithful group and a proud American. This journey I am on will be difficult for all involved but every mile traveled has the potential to help find a cure so that no other person will have to die of this disease. My faith sustains and guides me. I will not stop fighting!
June 15 - Move That Mountain Tour
Old Idaho Penitentiary Boise, ID
June 17 - Move That Mountain Tour
June 19 - Move That Mountain Tour
June 22 - Move That Mountain Tour
June 22 - ROALS Silent Auction for Jerameys Journey
June 28 - MOVE THAT MOUNTAIN TOUR
ALS attacks the nerves, called motor neurons, that control voluntary muscles (the muscles we are able to control). This leads to progressive weakness and disability. When these cells die, voluntary muscle control and movement are lost. People with ALS eventually lose their strength and ability to move their arms, legs, and body, and eventually the ability to breathe on their own. In most cases, their minds remain sharp and alert leaving them VICTIMS trapped in their own body.
While ALS is a rare disease, it is one of the most common neuromuscular conditions. There is currently no cure for ALS. A life expectancy of 2 – 5 years from diagnosis is the prognosis. This disease is fatal… THERE IS NO CURE!
What Drives Us
To educate and bring awareness to the masses while spreading inspiration and joy. ALS can be cured if enough awareness is generated which will result in more research and inevitably a cure. The mission is really simple, finding a cure is the challenge.
The end goal for Jerameys Journey is to be able to build a fully handicap accessible home, complete with 3 bedrooms, accessible bathrooms, solar powered, ceiling track system, and the list goes on. It will be provided to a family fighting ALS totally free. The support of the family and the ability to stay together through this disease is important. Most families can’t afford to remodel their home when a disease like this strikes, we want to relieve them of that burden. Through our rallies, walks, concerts, motorcycle rides, merchandise sales, and numerous events we will fund “The Journeys Hope Foundation” to make this a reality. We will attempt to meet the needs in a practical way until a cure or treatment is discovered.